Another life/child, Worth every penny

We had the opportunity to attend the National MPS conference in Alliston ON this past weekend.  We weren't going to go at first because Daphnie had her year end ball tournament on the same weekend.  When we learned that she could be done playing early on Saturday, we decide to book the hotel room and register for at least half of the conference that we could attend.
BOY are we glad we did.
We met a great family from Saskatchewan including 3 year old Violet who made the journey over to Ontario mostly for this conference and the opportunity to meet and network with some other MPS affected families, specifically the More's and the McFadyen's.
This young family just received the devestating diagnosis for their darling daughter this past February.  Since then they have been trying to sustain the funding needed to get enzyme replacement therapy for Violet in Saskatchewan.
Flashback to exactly 1 year from now.......  We were right in the middle of our quest for the very same thing here in Ontario.  We had the benefit of a precedent set by Isaac.  Violet doesn't have that 'luxury' in their province but she does have all of us on her side and in her corner 100%.

See in the photo, taken at the conference of the 3 children affected, standing together, already becoming friends.  These 3 share something in common with each other that only 6 others in all of Canada share.  Each one is very special and worth every penny.
If it comes to it again, we are prepared to launch a very public campaign to secure Violet's funding, but hopefully Saskatchewan won't be as difficult as Ontario was.
All the best as always.
The More's.