Our most recent trip to London was yesterday (Sept 7) in which we had a follup appt in the Metabolic clinic just to make sure all Jasper's baseline checks (height, weight, GAG level etc) were done and up to date before we start treatment. We we also fortunate enough to have our pre-opp with the anesthesioligist done as well.
Port-a-cath insertion surgery is scheduled for Oct 19th, but we're hoping our team is able to get that pushed up as they won't start ERT on Jasper until the port surgery is done.
At this point, it looks like Wednesdays will be our weekly trip to London for treatments.
All the best to all.
The Mores
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